Got the call today - We knew rhabdomyosarcoma was a likely diagnosis, but now it’s official.
We are going into Boston Thursday to meet with Dr. Friedmann; 25 minutes on the phone today just didn’t seem to cover it all. The plan is to have a port put in Liam on Friday, get a bone marrow sample at the same time, then have our first round of chemotheraopy. Dr. Ryan will be our surgeon on Friday.
So …. Other things to note.
- “Couple” more days in the hospital. I would love to think we’ll be home for New Year’s, but not getting my hopes up too high.
- The chemo plan sounds pretty aggressive…. Weekly for 40 weeks. VAC (VCR, DACT, and cyclophosphamide). We’ll get more on this Thursday. Every third treatment, we’ll need to plan for an overnight stay.
-If you'd like to see how this all started... You can view a copy of the follow-up chest x-ray that was supposed to confirm the pneumonia was gone. To quote that nice ER doctor over at Children’s Hospital, “It’s quite large”. Warning though - not for the faint of heart... just look for the big meatball in the middle of the page.
That's it for now - I usually reach a point where I don't want to talk anymore, and I must say, I'm done for today. Too much time on the telephone... check back for updates.
3 comments:
A little bit of good news... got word that the lymphnodes were clear - one more plus for the good guys. Think I'll have to start a scoreboard!
hey dude...keep hanging in there...you all are always in my thoughts and prayers. You have to believe there is a reason for this--and someday down the road, when we're all old and grey, we're going to "remember when" and make Liam take us out on the town!
I'll call you later if you're up for it.
Love you
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