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We are winding down our last few days of summer vacation; seems like most families are back to school already, but we don’t start up until September 9th.. so we have a few more days to enjoy. This really has been a carefree summer for us, lots of cape time (some of it rainy), pool time, birthday parties, the zoo, running…not a whole lot of gardening though - which means the yard looks like a jungle.
So where to begin…the “MGH” news… we got the pictures back from our flashes of hope session; beautiful black and white shots of the kids, the family and lots of individuals of Liam. I’ll probably post this blog entry then back track to find the disk and upload a few of the pictures…. Liam’s next scan is in about a month. The last few scans he’s had, we have made an attempt to try the scan without sedation, but it never seems to work out. I was thinking of putting a few boxes together to “practice” a scan at home, maybe put Liam in a wagon, turn the vacuum on and roll him through. This thought lasted maybe three minutes before I came to my senses… I’m sure we can think of better use of the boxes…. Some really disheartening news from a fellow MGH family – Shaney, (diagnosed on the same day as Liam, at the same age, same cancer shared and even shared a room together with his family the first night Liam had chemotherapy) well.. his mom found out she had breast cancer and is having a double mastectomy this week. When I first heard the news, I was so angry, I still am… She had run the Boston Marathon in 2008 for Shaney, and they were a big support for Bridgett running in 2009. Just doesn’t seem right, so we are looking for ways to help them over the next few months…
On the running front, Bridgett is still feeling the aftereffects of the marathon. She did however, muster up enough strength to run a 5k this weekend to support The Jamie Fund/Special Education programs in Mansfield. (link on the side). I managed to make it through the Falmouth Road Race in August, and will probably look for a few other races this fall. We are always looking for your support (And donations!!) and the latest event we are participating in is the 2009 Southern New England Autism Walk for Autism Speaks. Not only are we walkers, but we are co-captains of a team… “Mansfield Miracles”. The families we have teamed up with are those of Owen’s classmates from back in his Roland Green days, all of who are dealing with some type of Autism Spectrum diagnosis in their children as well. It’s less than a week to go until the walk, and we are very far behind with our fundraising target, so once again, we’re reaching out to our friends and family for their support... Click here for our webpage.
I often find myself going back and rereading this blog to figure out where the last 2+ years have gone. Just last week, on Troy’s second birthday, we were trying to remember the days leading up to his birth; I’m thankful that I have this as a reminder… so even though I spend a good deal of time on Facebook now, I’ll always try to keep this site updated.
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